January 2014 Newsletter
The January 2014 edition of the BDSRA newsletter is now [...]
Clinical Trial Updates
Three major research investigations in Batten disease continue to seek [...]
Join the BDSRA 2013 Annual Fund
You can double your donaton to the annual fund by [...]
BDSRA Welcomes New Board Members
The results are in! BDSRA held annual elections in November, [...]
StemCells, Inc. Announces Results of Long-Term Follow-Up Study in Batten Disease
Human Clinical Data Encompasses Five Years of Post-Transplant Safety NEWARK, [...]
BDSRA Receives Genzyme Patient Advocacy Leadership (PAL) Award
Genzyme Announces Winners of Patient Advocacy Leadership (PAL) Awards CAMBRIDGE, [...]
BioMarin Pharmaceutical Inc. launches first phase of study in Hamburg, Germany
We applaud BioMarin Pharmaceutical Inc. for the official start of [...]
September issue of our newsletter the Illuminator
Check out the new edition of BDSRA newsletter to get [...]
We appreciate and thank our conference sponsors!
Many thanks to all who attended, participated and contributed - [...]
$1M in Batten Disease Research Funding Awarded through BDSRA Research Funding Collaborative
$1M in Batten Disease Research Funding Awarded
