2014 Research Awards
In 2014, the BDSRA reached out to dozens of researchers [...]
BDSRA Board Nominations Open
There are 2 open seats for the BDSRA Board of [...]
University of Rochester Clinical Research Survey
The University of Rochester Medical Center is currently recruiting patients [...]
The Summer issue of the Illuminator Newsletter
The Summer 2015 edition of the BDSRA newsletter is now [...]
University of Rochester CLN3 Research Study
Function and Quality of Life in Juvenile Neuronal Ceroid Lipofuscinosis [...]
The Spring issue of the Illuminator Newsletter
The Spring 2015 edition of the BDSRA newsletter is now [...]
CLN2 Enzyme Replacement Trial Opens First US Site
We are very happy to announce that the first United [...]
BDSRA Funds Crucial Project to Expand a Batten Disease Patient Registry
One of the most important steps toward finding effective medical [...]
Hope 4 Bridget Family Foundation Sees the Power of Partnership in Research and Finding a Cure
Bridget Kennicott was born on November 11, 2004, to proud [...]
Charlee Nelson Inspires Utah Legislation Named in Her Honor
For Catrina and Jeff Nelson, losing their 6-year-old daughter Charlee [...]
