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    • Types of Batten Disease
    • Symptoms and Diagnosis
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    • Giving Guide
    • 2024 Annual Appeal
    • Donor Advised Fund Giving Form
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      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
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    • Types of Batten Disease
    • Symptoms and Diagnosis
  • Ways to Give
    • Fam Funds
      • Interest Form
    • Giving Guide
    • 2024 Annual Appeal
    • Donor Advised Fund Giving Form
  • Support
    • Centers of Excellence
    • Annual Family Conference
      • 2025 BDSRA Annual Family Conference
    • Caregiver Resources
    • Newly Diagnosed?
    • Family Grants
    • Family and Caregiver Support
      • Parenting and Finding Emotional Support
      • Parents and Family Members as Caregivers
      • Bereaved Parents and Caregivers
      • Nuts and Bolts of Care
      • Educational Resources
    • Support for Batten Siblings
    • Join the BDSRA Community
    • Resource Corner
  • Research
    • Global Research Initiative
      • Researcher Email List
    • Centers of Excellence
    • Clinical Trials & Natural History Studies Chart
    • Family Register
    • Research and Clinical News
    • Research and Treatments
    • Current RFPs
    • Research Awards 2019
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    • Advocacy Toolkit
    • Rare Disease Week
    • State and Local Initiatives
    • Hometown Efforts
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    • Illuminator Newsletter
    • Press and Media
    • Social Media
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NOW OPEN: Batten Disease Awareness Day Fundraising

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  4. NOW OPEN: Batten Disease Awareness Day Fundraising

NOW OPEN: Batten Disease Awareness Day Fundraising

 

It’s that time of year again!

For this year’s International Batten Disease Awareness Day on June 9th, the BDSRA Foundation is setting a $75,000 fundraising goal. The proceeds you raise towards that goal will help BDSRA provide compassionate support and advocacy for all types of Batten disease.

We know we can do it! We surpassed our original goal of $10,000 last year and tallied over $53,000 thanks to you and your advocacy. Register for the virtual 5K, create a fundraising page, join or create a team, order T-shirts (see the official 2024 T-shirt below), and raise funds leading up to International Batten Disease Awareness Day on June 9th by clicking the button below.

For any questions, please reach out to support@bdsrafoundation.org.

Get Started
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By Patrick Kotnik|2024-04-19T09:05:20-04:00April 19th, 2024|Advocacy, Latest News|Comments Off on NOW OPEN: Batten Disease Awareness Day Fundraising

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