NOW OPEN: Batten Disease Awareness Day Fundraising

It’s that time of year again!

For this year’s International Batten Disease Awareness Day on June 9th, the BDSRA Foundation is setting a $75,000 fundraising goal. The proceeds you raise towards that goal will help BDSRA provide compassionate support and advocacy for all types of Batten disease.

We know we can do it! We surpassed our original goal of $10,000 last year and tallied over $53,000 thanks to you and your advocacy. Register for the virtual 5K, create a fundraising page, join or create a team, order T-shirts (see the official 2024 T-shirt below), and raise funds leading up to International Batten Disease Awareness Day on June 9th by clicking the button below.

For any questions, please reach out to support@bdsrafoundation.org.