Register or find more information on all October 2021 events important to our Batten Community below.

GET READY TO PARTY!
BDSRA BOO BASH
0
0
0
0
Days
0
0
Hrs
0
0
Min
0
0
Sec
REGISTER

ASK-AN-EXPERT: LAB EDITION

Join us for Ask-An-Expert: Lab Edition on Tuesday, October 19th, 2021 at 5:00pm EST with Brandon Whipple, Director Surgical Research Center and Director Animal Research Center at Sanford Research. Lab Edition includes an informational session on how labs function and a LIVE Q&A to follow.

REGISTER

BSDRA BOO BASH

Join us Thursday, October 28th 2021 at 5:30pm EST for the BDSRA Boo Bash! Enjoy a spook-tacular party of family fun with the BDSRA team! Choose a “Boo Bash Box” ticket to receive a free box of boo-tastic supplies to use during the party! This box will include crafts, games, and a ghostly-fun book to read together! Register by October 15th to be able to receive the Boo Bash Box. One box is needed per participant, U.S. families only. Register with the button below. We look forward to seeing you at the event!

REGISTER

NCL 2021

The International Congress on Neuronal Ceroid Lipofuscinosis event will take place at Washington University, St Louis, October 6-10, 2021 and will be a ‘hybrid’ conference. This means both in-person and online-only registration options will be available. There is also a reduced registration fee for families available! This a parent-friendly conference; decoding the science for everyone to understand. BDSRA’s Amy Fenton Parker and Morgan DeBoth will be in attendance. All are welcome!
LEARN MORE

NORD RARE SUMMIT

Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products. Virtual, October 18-19, 2021.
REGISTER