For Rare Disease Week this week, we invite the Batten community to send emails to their congressional representatives using our NEW advocacy module.

This module includes a pre-written letter, asking your representatives to drive legislative efforts prioritizing increased funding for rare disease research and for them to urge the FDA to adopt more flexible standards for drug approval for rare diseases. Once you fill in your address, the module finds your representatives for you! It takes just three easy steps:

1. Take action
2. Send emails
3. Share with others!

On the module page, you will find a video tutorial by BDSRA Database Manager Noah Siedman walking you through the process. Click the button below to get started.