Why fundraise for BDSRA and Batten disease?

“If every single person on the planet knew about what Batten disease was doing to kids, I think there’d be a cure by now.”

Supporting fellow Batten families and finding a cure for Batten disease are why Terry and Stacy Thoene, parents of Oliver, who has CLN2 Batten disease, raise funds for BDSRA through the Fam Funds program. You can support the Thoene family’s fundraiser and many others by visiting the Fam Funds page.