Your Batten Disease Awareness Day Toolkit!

Hello Batten Community,

As promised in this April’s Illuminator, we’re sharing a toolkit to help make participation in this year’s International Batten Disease Awareness Day—June 9th—simple and impactful. When you CLICK HERE, you’ll find:

A pre-written letter you can email, print, or hand-deliver to your neighbors, friends, family—anyone who should know about Batten.
A JPEG graphic you can share on your social media accounts to help spread awareness.
Sample messages to accompany the social media graphic.

This is OUR day to stand together, raise our voices, and tell the world about Batten disease. It’s also a time to celebrate that no one battles Batten alone.

International Batten Disease Awareness Day is our opportunity to ask our communities for support—through both awareness and donations—to help fund:

Support Grants for families in need
Research Grants
Our Annual Family Conference

Thank you for being a part of the 2025 International Batten Disease Awareness Day. Last year’s donations totaled over $84,000, setting a new record. Let’s aim even higher this year as we continue to fight Batten disease—together.

With gratitude,