Important Dates For The Batten Disease Community
Hello Everyone, April showers bring May flowers, but here [...]
Characterizing Sleep in Batten Disease Study
Research Study Announcement Study Title: Characterizing Sleep in Batten Disease [...]
Joint Statement to the Global Batten Disease Community
Dear Batten community, Over the past few years, Lexeo Therapeutics [...]
CLN2 Batten Disease Community Survey
CLN2 Batten Disease Caregiver Study Understanding the patient journey, [...]
Batten Disease Q&A | 2024 Rare Disease Week Recap
Provide 1-2 main takeaways from this event. One of the [...]
CONFERENCE NEWS: Hotel Room Block, Conference Grants Now Available!
St. Louis is the next stop on our path [...]
2024 International Batten Disease Awareness Day T-Shirt Design Contest
Submit A Design Today! It Could Be Featured on [...]
FEBRUARY NEWSLETTER | Read The Illuminator
February 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February Illuminator Edition
Another month has passed, which means it's time for research [...]
RARE DISEASE WEEK | Advocate For The Batten Disease Community Today!
Send Emails to Your Congressional Reps in 3 Easy [...]
