NEW Upcoming Events; Batten Disease Research Survey Deadline Extended
Batten Research Survey Deadline Extended In partnership with Kennedy [...]
Batten Disease Research Survey
Please share your opinion on Batten disease research needs for [...]
LOTS of Important Dates, Batten Disease Research & Conference News
UPCOMING DATES & EVENTS A LOT is going on [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Post-April Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
DEADLINE: Order Batten Awareness Day T-Shirts By THIS SUNDAY!
If you haven't purchased your International Batten Disease Awareness [...]
APRIL NEWSLETTER | Read The Illuminator
April 2024 [...]
PRESS RELEASE: Latus Launches with State-of-the-Art Gene Therapy Development Technologies
This press release first appeared on Business Wire. PHILADELPHIA--(BUSINESS WIRE)--Latus [...]
Advocacy in Action: RARE Drug Development Symposium Summary
In his own words, BDSRA Foundation Database Manager Noah Siedman [...]
T-Shirt Design Contest Introduces Batten Disease To Local Community
Eight-year-old Kennedy Reed’s simple love for drawing and coloring has [...]
NOW OPEN: Batten Disease Awareness Day Fundraising
It's that time of year again! For this year's [...]
