What if? The Importance of Newborn Screening Advocacy to the Fennell Family
When Claudia Fennell sits at the dinner table with her [...]
Newborn Screening and RUSP Alignment | A Conversation with EveryLife Foundation’s Annie Kennedy
September is Newborn Screening Awareness Month. Listen to this [...]
READ | The Illuminator August Edition Has Arrived!
August 2023 [...]
Research Updates with Dr. Ineka Whiteman | August Illuminator Edition
NCL RESEARCHERS CHALLENGE – CONGRATULATIONS TO OUR WINNERS! As part [...]
Take the Virtual Events Survey
As we prepare for future virtual programming, we want [...]
Clinical Trial Updates | Gene Therapy for CLN2 Batten Disease
By Dr. Ineka Whiteman, BDSRA Foundation Head of Research & [...]
READ | The Illuminator July Edition Has Arrived!
July 2023 [...]
Research Updates with Dr. Ineka Whiteman | July Illuminator Edition
FEATURED ARTICLE Annual Family Conference 2023 – Clinical & Scientific [...]
PHOTO GALLERY | 2023 Annual Family Conference
Go behind the scenes of the 2023 BDSRA Foundation [...]
Complete the Post-Conference Surveys!
What were your thoughts on this year’s BDSRA Annual Family [...]
