In 2024, recognizing the urgent need to establish research priorities across the basic, translational, and clinical sciences to tackle the most pressing concerns of the Batten disease community, the Batten Disease Clinical Research Consortium (BDCRC) was established. This U.S. academic network is designed to serve as a collaborative framework to advance clinical research in Batten disease. Led by Kennedy Krieger Institute (MD) and the BDSRA Foundation, a Priority Setting Partnership gathered community input to identify top research goals. The results informed the research strategy for the Batten Disease Global Research Initiative (BDGRI) and, excitingly, were just published in The Lancet Neurology journal. Congratulations to the BDCRC authors and our own BDSRA Foundation team members!