The National Organization for Rare Disorders (NORD) offers the Batten Disease Emergency Relief Program. This program assists eligible individuals with the cost of unexpected or emergency non-medical expenses that cannot be afforded without short-term assistance. Examples include the cost of repair for a car or major appliances, unexpected utility costs, or cell phone bills that cannot be afforded due to lost wages from time off related to illness or care of ill family.

Click here to learn more about NORD’s Batten Disease Emergency Relief Program!