Batten Disease Research Updates with Dr. Ineka Whiteman | Sept-Nov 2025
It’s time for Batten disease research updates! BDSRA Foundation’s [...]
CLN2 Batten Disease Update from Tern Therapeutics
More positive news for our CLN2 community this week, [...]
CLN2 Batten Disease Update from Latus Bio
Latus Bio announced today clearance by the U.S. Food [...]
NOVEMBER ASK-AN-EXPERT EVENT POSTPONED; WILL BE RESCHEDULED
The next Ask-An-Expert session, which was scheduled for Tuesday, [...]
PUBLICATION ALERT: Batten Disease Research Goals Published in The Lancet Neurology
In 2024, recognizing the urgent need to establish research [...]
BDSRA Foundation Announces Mount Sinai Health System as New Site in Clinical Centers of Excellence Program
GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Summer 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | April 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
