Kennedy Krieger Institute Awarded $8.17 Million Grant To Lead National Research Consortium; Will Work Closely With The BDSRA Foundation
PRESS RELEASE: [...]
NOVEMBER ASK-AN-EXPERT EVENT POSTPONED; WILL BE RESCHEDULED
The next Ask-An-Expert session, which was scheduled for Tuesday, [...]
PUBLICATION ALERT: Batten Disease Research Goals Published in The Lancet Neurology
In 2024, recognizing the urgent need to establish research [...]
BDSRA Foundation Announces Mount Sinai Health System as New Site in Clinical Centers of Excellence Program
GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Summer 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | April 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February & March 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
BREAKING: Batten Disease Global Research Initiative Announces Grant Recipients
We are proud to announce the recipients of the [...]
CLINICAL UPDATE: Tern Therapeutics Gives CLN2 Batten Disease Update
The following letter from Tern Therapeutics shares the latest on [...]
