Global Update – CLN5 Batten Disease Clinical Trial
August 12, 2024 – On Friday, August 9, Neurogene Inc. [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | July 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
FDA Approves BioMarin’s BRINEURA® for Children Under 3 Years with CLN2 Batten Disease
Read the following press release and information below courtesy of [...]
BREAKING: BDSRA Foundation Unveils CoE & Affiliates; Batten Disease Global Research Initiative
ST. LOUIS (July 15, 2024) – The BDSRA Foundation [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | June Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | May Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Post-April Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | March Illuminator Edition
Another month has passed, which means it's time for research [...]
Joint Statement to the Global Batten Disease Community
Dear Batten community, Over the past few years, Lexeo Therapeutics [...]
CLN2 Batten Disease Community Survey
CLN2 Batten Disease Caregiver Study Understanding the patient journey, [...]
