Q&A | Get to Know BDSRA Foundation’s newest hire, Dr. Ineka Whiteman!
Earlier this week, BDSRA Foundation officially announced the hiring of [...]
BDSRA Foundation Hires Dr. Ineka Whiteman as Head of Research & Medical Affairs
June 19, 2023 | Press Release GAHANNA, Ohio – The [...]
Six years after FDA approval, VanHoutan reflects on Brineura
The power of advocacy can be defined by Tracy VanHoutan’s [...]
Statement from Global Batten Disease Organizations on CLN7 Research
Dear families, As some of you have already heard, last [...]
Batten Research Updates: 10/13
Click on the links below to read up on the [...]
A Letter to the Community from Taysha Gene Therapies
Taysha Gene Therapies has recently released the attached letter on [...]
WORLDSymposium 2021
WORLDSymposium 2021 February 8-12 basic, translational and clinical researchers, patient [...]
Batten Research Learning Lab: Therapeutic Strategies
Below are the most common therapeutic strategies in use for [...]
Batten Research Learning Lab: What Are Animal Models?
Model systems are an important part of disease research. These [...]
