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Shop from Fundraisers to Support BDSRA!

We have secured fundraising with several outside companies that [...]

By Patrick Kotnik|2025-06-18T15:16:21-04:00June 18th, 2025|Latest News|Comments Off

Reserve your Hotel Rooms by July 1! You now [...]

By Patrick Kotnik|2025-06-17T14:51:24-04:00June 17th, 2025|Latest News|Comments Off

We are ONE MONTH AWAY from Day 1 of [...]

By Patrick Kotnik|2025-06-10T16:06:14-04:00June 11th, 2025|Latest News|Comments Off

May 2025 [...]

By Patrick Kotnik|2025-05-30T16:08:07-04:00May 30th, 2025|Latest News|Comments Off

UPCOMING EVENTS There are LOTS of important events and [...]

By Patrick Kotnik|2025-05-16T09:25:04-04:00May 16th, 2025|Advocacy, Latest News|Comments Off

Hello Batten Community, As promised in this April's Illuminator, [...]

By Patrick Kotnik|2025-05-12T18:01:10-04:00May 13th, 2025|Latest News|Comments Off

April 2025 [...]

By Patrick Kotnik|2025-05-01T19:50:32-04:00May 1st, 2025|Latest News|Comments Off

It's time for Batten disease research updates! BDSRA Foundation's [...]

By Patrick Kotnik|2025-05-01T18:37:50-04:00May 1st, 2025|Clinical News, Latest News, Research News|Comments Off

Research & clinical sessions, FREE childcare, activities for siblings [...]

By Patrick Kotnik|2025-04-24T16:50:43-04:00April 26th, 2025|Latest News|Comments Off

Written by Beth Fries Imagine turning your journey into [...]

By Patrick Kotnik|2025-04-21T14:43:57-04:00April 22nd, 2025|Latest News|Comments Off