Batten Disease Research Updates with Dr. Ineka Whiteman | Summer 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
JULY 2025 NEWSLETTER | The Illuminator From BDSRA
July 2025 [...]
BDSRA Board of Directors Announcements
At the latest [...]
Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
Complete the Post-BDSRA Conference Surveys!
Overall Conference Survey Life Goes On Survey Childcare [...]
News Coverage Spotlights BDSRA Conference and Batten Disease
THANK YOU to 10/11 News and News Channel Nebraska [...]
JUNE 2025 NEWSLETTER | The Illuminator From BDSRA
June 2025 [...]
Hotel Room Block Deadline is JULY 1
Reserve your Hotel Rooms by TOMORROW, July 1! TOMORROW, [...]
Shop from Fundraisers to Support BDSRA!
We have secured fundraising with several outside companies that [...]
Conference Hotel Room Deadline Extended!
Reserve your Hotel Rooms by July 1! You now [...]
