NEW Upcoming Events; Batten Disease Research Survey Deadline Extended
Batten Research Survey Deadline Extended In partnership with Kennedy [...]
DEADLINE: Order Batten Awareness Day T-Shirts By THIS SUNDAY!
If you haven't purchased your International Batten Disease Awareness [...]
Advocacy in Action: RARE Drug Development Symposium Summary
In his own words, BDSRA Foundation Database Manager Noah Siedman [...]
T-Shirt Design Contest Introduces Batten Disease To Local Community
Eight-year-old Kennedy Reed’s simple love for drawing and coloring has [...]
NOW OPEN: Batten Disease Awareness Day Fundraising
It's that time of year again! For this year's [...]
WATCH: BDSRA’s Noah Siedman Speaks at NewYorkBIO Patient Engagement Summit
BDSRA Foundation Database Manager Noah Siedman spoke at the [...]
Important Dates For The Batten Disease Community
Hello Everyone, April showers bring May flowers, but here [...]
Batten Disease Q&A | 2024 Rare Disease Week Recap
Provide 1-2 main takeaways from this event. One of the [...]
2024 International Batten Disease Awareness Day T-Shirt Design Contest
Submit A Design Today! It Could Be Featured on [...]
RARE DISEASE WEEK | Advocate For The Batten Disease Community Today!
Send Emails to Your Congressional Reps in 3 Easy [...]
