Batten Disease Q&A | 2023 NCL Congress Summary
The Batten Disease Support, Research, & Advocacy (BDSRA) Foundation was [...]
The Batten Disease Support, Research, & Advocacy (BDSRA) Foundation was [...]
Suzette James, a late-onset CLN2 Batten disease mother to Maya [...]
September 2023 [...]
Greetings from the NCL 2023 Congress in Hamburg, Germany! This [...]
When Claudia Fennell sits at the dinner table with her [...]
September is Newborn Screening Awareness Month. Listen to this [...]
August 2023 [...]
NCL RESEARCHERS CHALLENGE – CONGRATULATIONS TO OUR WINNERS! As part [...]
As we prepare for future virtual programming, we want [...]
By Dr. Ineka Whiteman, BDSRA Foundation Head of Research & [...]