Advocacy in Action | Suzette James
Suzette James, a BDSRA Foundation Board of Directors member and [...]
BDSRA Board of Directors Quarterly Meeting | April 23, 2023 Agenda
Read the agenda below for the BDSRA Foundation Board [...]
BDSRA 2023 Annual Family Conference Help Grant
Conference Help Grant Because of forward-thinking and generous donors who [...]
Introducing the International Batten Disease Awareness Day T-Shirt Design Contest!
BDSRA Foundation is holding a T-shirt contest to determine the [...]
READ | The Illuminator March Edition Has Arrived!
March 2023 [...]
BDSRA Board Member, Batten mother will be a panelist in FDA virtual workshop
The fight for gene therapy has been a long, uphill [...]
Rare Disease Week offers a storybook ending and road for optimism
By Patrick Kotnik - BDSRA Marketing & PR Coordinator We [...]
READ | The Illuminator February Edition Has Arrived!
February 2023 [...]
Stronger together: The story of four Batten mothers who teamed up to speak to the FDA
It started with one mother of two CLN2 Batten disease-affected [...]
Patterson wedding raises over $9,000 in donations for BDSRA
Prior to John and Carol Patterson’s wedding this past November, [...]
