Reserve Your Rooms for the 2023 BDSRA Annual Family Conference!
Rooms can now be reserved for this year’s BDSRA Annual [...]
Statement from Global Batten Disease Organizations on CLN7 Research
Dear families, As some of you have already heard, last [...]
READ | The Illuminator January Edition Has Arrived!
January 2023 [...]
BDSRA unveils 2022 Annual Appeal total
BDSRA Foundation to unveil the grand total for the 2022 [...]
BDSRA Board of Directors Quarterly Meeting | January 21, 2023 Agenda
Read the agenda below for the BDSRA Foundation Board [...]
WE ARE MOVING! Preparations are underway!
New year, new home! BDSRA Foundation is moving to a [...]
SAVE THE DATE | 2023 BDSRA Hybrid Family Conference
The 2023 BDSRA Annual Hybrid Family Conference will take place [...]
Happy New Year From BDSRA!
Your support is crucial to our vision of A [...]
BDSRA Foundation Board Member Spotlight | Fred Surrey
The November Board Member Spotlight features Treasurer Fred Surrey. In this [...]
READ | The Illuminator November Edition Has Arrived!
November 2022 [...]
