BDSRA Foundation Joins Organizations in Urging Congress to Take Action on NBS Bill
The Batten Disease Support, Research, and Advocacy (BDSRA) Foundation joins [...]
Rallying for Research | Donations Pave Way for BDSRA Research Position
What started with a generous $5,000 donation soon grew into [...]
Your BDSRA Foundation August Newsletter is here!
August 2022 [...]
BDSRA Foundation is Hiring!
The BDSRA Foundation is hiring a Database Manager who'll provide [...]
Watch the August Ask-An-Expert Webinar on BDSRA Foundation’s YouTube Channel!
Alongside BDSRA Foundation Vice President of Support & Advocacy and [...]
BDSRA Foundation participates in Rare Across America
Rare Across America is an annual event that serves as [...]
Batten Resource Corner | NORD’s Batten Disease Emergency Relief Program
The National Organization for Rare Disorders (NORD) offers the Batten Disease [...]
Your BDSRA Foundation July Newsletter is here!
July 2022 [...]
Batten Disease Clinic at Kennedy Krieger Institute in Baltimore, MD is now open
The BDSRA Foundation and Kennedy Krieger Institute are excited to [...]
Photo Gallery | BDSRA Foundation Family Conference 2022
Go behind the scenes of the 2022 BDSRA Foundation Hybrid [...]
