Stronger together: The story of four Batten mothers who teamed up to speak to the FDA
It started with one mother of two CLN2 Batten disease-affected [...]
It started with one mother of two CLN2 Batten disease-affected [...]
Prior to John and Carol Patterson’s wedding this past November, [...]
Rooms can now be reserved for this year’s BDSRA Annual [...]
Dear families, As some of you have already heard, last [...]
January 2023 [...]
BDSRA Foundation to unveil the grand total for the 2022 [...]
Read the agenda below for the BDSRA Foundation Board [...]
New year, new home! BDSRA Foundation is moving to a [...]
The 2023 BDSRA Annual Hybrid Family Conference will take place [...]
Your support is crucial to our vision of A [...]