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BDSRA Supports Missouri Legislation: Will’s Law

BDSRA statement of support for Will’s Law (SB [...]

By Patrick Kotnik|2022-04-22T17:03:45-04:00April 23rd, 2022|Latest News|Comments Off

The Batten Disease Support and Research Association and its [...]

By Patrick Kotnik|2022-05-06T09:17:29-04:00April 22nd, 2022|Ask The Experts, Latest News|Comments Off

CLN1 & CLN7 Communities, We would like to bring [...]

By Morgan Deboth|2022-04-20T17:47:23-04:00April 20th, 2022|Latest News|Comments Off

March 2022 [...]

By Morgan Deboth|2022-03-31T12:29:11-04:00March 31st, 2022|Latest News|Comments Off

February 2022 Volume 33, Issue 2 It's Rare Disease Day! [...]

By Morgan Deboth|2022-03-30T20:20:43-04:00March 30th, 2022|Latest News|Comments Off

Click Here to Register! June 9th is International [...]

By Morgan Deboth|2022-03-30T20:22:52-04:00March 30th, 2022|Latest News|Comments Off

We are very excited to share that the clinical trial [...]

By Morgan Deboth|2022-02-10T16:53:54-05:00February 10th, 2022|Latest News|Comments Off

Taysha Gene Therapies is planning a webinar and invites the [...]

By Morgan Deboth|2022-02-03T13:19:37-05:00February 3rd, 2022|Latest News|Comments Off

The January 2022 Illuminator is here! BDSRA January Newsletter

By Morgan Deboth|2022-01-29T22:58:43-05:00January 30th, 2022|Latest News|Comments Off

BDSRA is hiring! Considering joining BDSRA's dynamic team. We're [...]

By Morgan Deboth|2022-01-24T09:18:01-05:00January 24th, 2022|Latest News|Comments Off