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Your BDSRA Foundation September Newsletter is here!

September 2022 [...]

By Patrick Kotnik|2022-10-20T12:26:29-04:00September 30th, 2022|Latest News|Comments Off

The Batten Disease Support, Research, and Advocacy Foundation offers its [...]

By Patrick Kotnik|2022-09-22T14:28:26-04:00September 22nd, 2022|Latest News|Comments Off

The Batten Disease Support, Research, and Advocacy (BDSRA) Foundation joins [...]

By Patrick Kotnik|2022-09-13T15:25:54-04:00September 13th, 2022|Latest News|Comments Off

What started with a generous $5,000 donation soon grew into [...]

By Patrick Kotnik|2022-09-02T08:37:51-04:00September 2nd, 2022|Latest News|Comments Off

August 2022 [...]

By Patrick Kotnik|2022-09-01T14:45:39-04:00August 30th, 2022|Latest News|Comments Off

The BDSRA Foundation is hiring a Database Manager who'll provide [...]

By Patrick Kotnik|2022-08-24T12:54:11-04:00August 25th, 2022|Latest News|Comments Off

Alongside BDSRA Foundation Vice President of Support & Advocacy and [...]

By Patrick Kotnik|2022-08-19T11:33:29-04:00August 19th, 2022|Ask The Experts, Latest News|Comments Off

Rare Across America is an annual event that serves as [...]

By Patrick Kotnik|2022-08-17T15:14:56-04:00August 17th, 2022|Latest News|Comments Off

The National Organization for Rare Disorders (NORD) offers the Batten Disease [...]

By Patrick Kotnik|2022-08-05T10:49:18-04:00August 5th, 2022|Latest News|Comments Off

July 2022 [...]

By Patrick Kotnik|2022-07-30T11:50:32-04:00July 30th, 2022|Latest News|Comments Off