Rare Community Urgent Call-To-Action
Urgent Call-To-Action: There is a pressing concern within Oregon [...]
December 2021 Newsletter
Ring in the new year and see some the great [...]
Taysha Gene Therapies has announced an important milestone for the Queen’s University clinical trial for TSHA-118, a CLN1 disease clinical trial funded by Taysha Gene Therapies. Please read the community letter here
Please read the community letter here: A Letter to the [...]
November 2021 Illuminator Newsletter
You can read the newsletter by scrolling to the [...]
Press Release: A letter from the CEO
Read below to see the official press release from [...]
2021 Annual Appeal: Support
Get ready- BDSRA is kicking off our 2021 Annual [...]
October Events: Click here!
Register or find more information on all October 2021 [...]
Your September 2021 Newsletter is Here!
To view the September edition of the Illuminator Newsletter, please [...]
BDSRA Releases the 2019-2020 Impact Report
September 2021 Dear Batten [...]
Your August Newsletter is Here!
Click here to view the August 2021 edition of the [...]
