Virtual 2021 BDSRA Annual Family Conference- Registration is live!
ABOUT THE CONFERENCE The BDSRA’s signature event each year [...]
BDSRA 1st Annual Equipment Exchange Swap Party
Batten Families, Please consider joining us for our 1st [...]
International Batten Disease Awareness Day Virtual 5k Registration is Live
To register visit: https://web.charityengine.net/IBAD2021
Your March Newsletter is here!
Your March Newsletter is Here!
A Letter to the Community from Taysha Gene Therapies
Taysha Gene Therapies has recently released the attached letter on [...]
Your February Newsletter has arrived!
Check out the February Illuminator!
WORLDSymposium 2021
WORLDSymposium 2021 February 8-12 basic, translational and clinical researchers, patient [...]
January Newsletter is here!
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BDSRA SELECTS AMY FENTON PARKER AS NEW EXECUTIVE DIRECTOR
FOR IMMEDIATE RELEASE January 25, 2021 BDSRA SELECTS AMY FENTON [...]
December Newsletter is here!
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