T-SHIRT DESIGN VOTING IS OPEN! Voting Closes Sunday
IT’S TIME TO VOTE! We’ve narrowed the Batten Awareness [...]
IT’S TIME TO VOTE! We’ve narrowed the Batten Awareness [...]
February/March 2025 [...]
RESERVE YOUR HOTEL ROOM IN LINCOLN, NEBRASKA! The hotel [...]
We are proud to announce the recipients of the [...]
Included in this email update: Batten Disease Global Research [...]
THERE'S LOTS GOING ON! TODAY'S Nationwide Panda Express Fundraiser [...]
The following letter from Tern Therapeutics shares the latest on [...]
While Rare Disease Week on Capitol Hill attendees meet [...]
28% of Panda Express Online Sales go to BDSRA [...]
The BDSRA Foundation is thrilled to welcome Gretchen Fieschko to [...]