Your Membership Matters
Loyal members have been BDSRA's foundation and an inspiration [...]
January Issue of the Illimunator
The January issue of the BDSRA newsletter The Illuminator is [...]
Batten siblings run for a cure
Six amazing Batten siblings have registered to run the Disney [...]
2016 BDSRA Annual Fund
Because of you. Because of families, volunteers, siblings and many [...]
November Issue of the Illuminator
The November issue of the BDSRA newsletter The Illuminator is [...]
2017 BDSRA Board Elections
There were four available seats on the BDSRA Board of [...]
October Issue of the Illuminator
The October issue of the BDSRA newsletter The Illuminator is [...]
15th International Conference on NCL
The 15th International Conference on NCL took place in Boston [...]
Battling Batten 5K Run and Family Walk
We are very excited to announce the Battling Batten Disease [...]
2015 BDSRA Annual Report
The 2015 BDSRA Annual Report is here and what a [...]
