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Gretchen Fieschko Joins BDSRA Foundation Board of Directors

The BDSRA Foundation is thrilled to welcome Gretchen Fieschko to [...]

By Patrick Kotnik|2025-02-04T11:08:21-05:00February 10th, 2025|Latest News|Comments Off

January 2025 [...]

By Patrick Kotnik|2025-01-31T07:36:21-05:00January 31st, 2025|Latest News|Comments Off

It's time for the first Batten disease research updates [...]

By Patrick Kotnik|2025-01-30T11:29:34-05:00January 30th, 2025|Clinical News, Latest News, Research News|Comments Off

*First 50 Responses will be mailed a $10 Dunkin' [...]

By Patrick Kotnik|2025-01-21T09:47:34-05:00January 21st, 2025|Advocacy, Latest News|Comments Off

Beth Fries We have contracted Beth Fries, a [...]

By Patrick Kotnik|2025-01-16T11:00:42-05:00January 16th, 2025|Advocacy, Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA We’re just getting [...]

By Patrick Kotnik|2024-12-19T17:34:33-05:00December 31st, 2024|Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA We can’t discover [...]

By Patrick Kotnik|2024-12-19T17:17:57-05:00December 27th, 2024|Advocacy, Latest News, Research News|Comments Off

Happy Holidays from BDSRA! ❄️ Please check out our [...]

By Patrick Kotnik|2024-12-19T14:41:28-05:00December 23rd, 2024|Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA Caring for a [...]

By Patrick Kotnik|2024-12-18T11:46:56-05:00December 19th, 2024|Advocacy, Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA The Annual Family [...]

By Patrick Kotnik|2024-12-12T12:05:10-05:00December 12th, 2024|Advocacy, Latest News|Comments Off