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May 2024 [...]

By Patrick Kotnik|2024-05-31T09:33:24-04:00May 31st, 2024|Latest News|Comments Off

It's time for research updates! BDSRA Foundation's Head of Research [...]

By Patrick Kotnik|2024-05-30T16:13:47-04:00May 30th, 2024|Clinical News, Latest News, Research News|Comments Off

Please share your opinion on Batten disease research needs [...]

By Patrick Kotnik|2024-05-24T11:33:30-04:00May 28th, 2024|Latest News, Research News|Comments Off

Batten Research Survey Deadline Extended In partnership with Kennedy [...]

By Patrick Kotnik|2024-05-24T11:35:37-04:00May 24th, 2024|Advocacy, Latest News, Research News|Comments Off

UPCOMING DATES & EVENTS A LOT is going on [...]

By Patrick Kotnik|2024-05-17T09:05:02-04:00May 17th, 2024|Latest News|Comments Off

It's time for research updates! BDSRA Foundation's Head of Research [...]

By Patrick Kotnik|2024-05-16T16:41:13-04:00May 16th, 2024|Clinical News, Latest News, Research News|Comments Off

If you haven't purchased your International Batten Disease Awareness [...]

By Patrick Kotnik|2024-05-09T17:06:34-04:00May 10th, 2024|Advocacy, Latest News|Comments Off

April 2024 [...]

By Patrick Kotnik|2024-05-03T10:44:37-04:00May 3rd, 2024|Latest News|Comments Off

In his own words, BDSRA Foundation Database Manager Noah Siedman [...]

By Patrick Kotnik|2024-05-02T15:46:53-04:00May 2nd, 2024|Advocacy, Latest News|Comments Off

Eight-year-old Kennedy Reed’s simple love for drawing and coloring has [...]

By Patrick Kotnik|2024-04-30T08:16:22-04:00April 30th, 2024|Advocacy, Latest News|Comments Off