WATCH: BDSRA’s Noah Siedman Speaks at NewYorkBIO Patient Engagement Summit
BDSRA Foundation Database Manager Noah Siedman spoke at the [...]
Conference Registration is OPEN; The Design Contest Winner is…
Meet Us in St. Louis This July! Registration for [...]
MARCH NEWSLETTER | Read The Illuminator
March 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | March Illuminator Edition
Another month has passed, which means it's time for research [...]
Vote For Your Favorite International Batten Disease Awareness Day T-Shirt Design!
We received 27 designs and narrowed it down to three [...]
Important Dates For The Batten Disease Community
Hello Everyone, April showers bring May flowers, but here [...]
Characterizing Sleep in Batten Disease Study
Research Study Announcement Study Title: Characterizing Sleep in Batten Disease [...]
Joint Statement to the Global Batten Disease Community
Dear Batten community, Over the past few years, Lexeo Therapeutics [...]
CLN2 Batten Disease Community Survey
CLN2 Batten Disease Caregiver Study Understanding the patient journey, [...]
Batten Disease Q&A | 2024 Rare Disease Week Recap
Provide 1-2 main takeaways from this event. One of the [...]
