READ | The Illuminator October Edition Has Arrived!
October 2023 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | October Illuminator Edition
FEATURE ARTICLE: NCL 2023 Congress Research Report International Congress on [...]
Ohio Rare Disease Advocacy Day Summary | Batten Disease
Batten Disease Support, Research, & Advocacy (BDSRA) Foundation represented the [...]
Batten Disease Q&A | 2023 NCL Congress Summary
The Batten Disease Support, Research, & Advocacy (BDSRA) Foundation was [...]
Batten Disease Advocacy in Action | Suzette James
Suzette James, a late-onset CLN2 Batten disease mother to Maya [...]
READ | The Illuminator September Edition Has Arrived!
September 2023 [...]
Research Updates with Dr. Ineka Whiteman | September Illuminator Edition
Greetings from the NCL 2023 Congress in Hamburg, Germany! This [...]
What if? The Importance of Newborn Screening Advocacy to the Fennell Family
When Claudia Fennell sits at the dinner table with her [...]
Newborn Screening and RUSP Alignment | A Conversation with EveryLife Foundation’s Annie Kennedy
September is Newborn Screening Awareness Month. Listen to this [...]
READ | The Illuminator August Edition Has Arrived!
August 2023 [...]
