PHOTO GALLERY | 2023 Annual Family Conference
Go behind the scenes of the 2023 BDSRA Foundation [...]
Complete the Post-Conference Surveys!
What were your thoughts on this year’s BDSRA Annual Family [...]
BDSRA Board of Directors Quarterly Meeting | July 13, 2023 Agenda
Read the agenda below for the BDSRA Foundation Board [...]
READ | The Illuminator June Edition Has Arrived!
June 2023 [...]
Research Updates with Dr. Ineka Whiteman | June Illuminator Edition
FEATURED ARTICLE CLN2 gene therapy rescues spontaneous seizures in Batten [...]
Q&A | Get to Know BDSRA Foundation’s newest hire, Dr. Ineka Whiteman!
Earlier this week, BDSRA Foundation officially announced the hiring of [...]
BDSRA Foundation Hires Dr. Ineka Whiteman as Head of Research & Medical Affairs
June 19, 2023 | Press Release GAHANNA, Ohio – The [...]
NEWS: Bean Introduces Bipartisan Resolution in Support of Americans with Batten Disease
Read the press release below from Florida Congressman Aaron Bean's [...]
The story behind this year’s International Batten Disease Awareness Day T-shirt design
As BDSRA Foundation announced its winner of the International Batten [...]
Resolution signed declaring June 9th Batten Disease Awareness Day in NY
ALBANY, N.Y. – A resolution has been signed to declare [...]
