News – Page 13 – Batten Disease Support & Research Association

WE ARE MOVING! Preparations are underway!

New year, new home! BDSRA Foundation is moving to a [...]

By Patrick Kotnik|2023-01-10T08:48:12-05:00January 10th, 2023|Latest News|Comments Off

The 2023 BDSRA Annual Hybrid Family Conference will take place [...]

By Patrick Kotnik|2023-01-31T14:34:45-05:00January 5th, 2023|Latest News|Comments Off

Your support is crucial to our vision of A [...]

By Patrick Kotnik|2023-01-02T10:30:48-05:00January 1st, 2023|Latest News|Comments Off

By Patrick Kotnik|2022-12-22T10:51:30-05:00December 22nd, 2022|Clinical News, Research News|Comments Off

The November Board Member Spotlight features Treasurer Fred Surrey. In this [...]

By Patrick Kotnik|2022-12-02T11:36:43-05:00December 2nd, 2022|Latest News|Comments Off

November 2022 [...]

By Patrick Kotnik|2022-12-02T12:00:53-05:00December 1st, 2022|Latest News|Comments Off

Donating to BDSRA last year was a decision that made [...]

By Patrick Kotnik|2022-11-22T13:22:58-05:00November 25th, 2022|Latest News|Comments Off

Read the letter below from BDSRA Foundation President & [...]

By Patrick Kotnik|2022-11-18T10:04:43-05:00November 18th, 2022|Latest News|Comments Off

Watch as BDSRA Foundation President & CEO Amy Fenton Parker [...]

By Patrick Kotnik|2022-11-15T14:35:10-05:00November 15th, 2022|Latest News|Comments Off

October 2022 [...]

By Patrick Kotnik|2022-10-31T16:46:23-04:00October 31st, 2022|Latest News|Comments Off