Watch the August Ask-An-Expert Webinar on BDSRA Foundation’s YouTube Channel!
Alongside BDSRA Foundation Vice President of Support & Advocacy and [...]
BDSRA Foundation participates in Rare Across America
Rare Across America is an annual event that serves as [...]
Batten Resource Corner | NORD’s Batten Disease Emergency Relief Program
The National Organization for Rare Disorders (NORD) offers the Batten Disease [...]
Your BDSRA Foundation July Newsletter is here!
July 2022 [...]
Batten Disease Clinic at Kennedy Krieger Institute in Baltimore, MD is now open
The BDSRA Foundation and Kennedy Krieger Institute are excited to [...]
Photo Gallery | BDSRA Foundation Family Conference 2022
Go behind the scenes of the 2022 BDSRA Foundation Hybrid [...]
Take the 2022 Post-Conference Survey!
The BDSRA Foundation staff and board would like to thank [...]
Your BDSRA Foundation June Newsletter is Here!
June 2022 [...]
Read the 2021 BDSRA Foundation Impact Report!
The BDSRA Foundation has unveiled its 2021 Annual Impact Report. [...]
BDSRA Brand Refresh
Dear Friends, Good afternoon! I wanted to reach out [...]
