Your February Newsletter is here!
February 2022 Volume 33, Issue 2 It's Rare Disease Day! [...]
International Batten Awareness Day 2022
Click Here to Register! June 9th is International [...]
NGN-101 is now enrolling participants at the clinical trial site
We are very excited to share that the clinical trial [...]
Taysha Invites CLN1 Community Feedback
Taysha Gene Therapies is planning a webinar and invites the [...]
January Illuminator is here
The January 2022 Illuminator is here! BDSRA January Newsletter
We’re Hiring!
BDSRA is hiring! Considering joining BDSRA's dynamic team. We're [...]
Rare Community Urgent Call-To-Action
Urgent Call-To-Action: There is a pressing concern within Oregon [...]
December 2021 Newsletter
Ring in the new year and see some the great [...]
Taysha Gene Therapies has announced an important milestone for the Queen’s University clinical trial for TSHA-118, a CLN1 disease clinical trial funded by Taysha Gene Therapies. Please read the community letter here
Please read the community letter here: A Letter to the [...]
November 2021 Illuminator Newsletter
You can read the newsletter by scrolling to the [...]
