News – Page 2 – Batten Disease Support & Research Association

CLN2 Batten Disease Update from Latus Bio

Latus Bio announced today clearance by the U.S. Food [...]

By Patrick Kotnik|2025-12-02T11:43:26-05:00December 2nd, 2025|Clinical News, Latest News, Research News|Comments Off

Giving Tuesday is NEXT WEEK! We know this year [...]

By Patrick Kotnik|2025-11-26T13:57:28-05:00November 26th, 2025|Latest News|Comments Off

PRESS RELEASE: [...]

By Patrick Kotnik|2025-11-18T14:02:07-05:00November 18th, 2025|Clinical News, Latest News, Research News|Comments Off

The next Ask-An-Expert session, which was scheduled for Tuesday, [...]

By Patrick Kotnik|2025-11-17T12:15:24-05:00November 17th, 2025|Clinical News, Latest News, Research News|Comments Off

October 2025 [...]

By Patrick Kotnik|2025-11-04T10:19:44-05:00November 4th, 2025|Latest News|Comments Off

Written by BDSRA Foundation President & CEO Amy Fenton Parker [...]

By Patrick Kotnik|2025-11-03T18:56:45-05:00November 3rd, 2025|Latest News|Comments Off

Dear Friend, Because of your support, 2024 was a [...]

By Patrick Kotnik|2025-10-28T10:58:07-04:00October 28th, 2025|Latest News|Comments Off

September 2025 [...]

By Patrick Kotnik|2025-10-03T13:39:52-04:00October 3rd, 2025|Latest News|Comments Off

In 2024, recognizing the urgent need to establish research [...]

By Patrick Kotnik|2025-10-03T13:38:44-04:00October 3rd, 2025|Clinical News, Latest News, Research News|Comments Off

GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]

By Patrick Kotnik|2025-09-22T13:02:44-04:00September 22nd, 2025|Clinical News, Latest News, Research News|Comments Off