Register for Conference & Virtual 5K TODAY!
Research & clinical sessions, FREE childcare, activities for siblings [...]
Your Story Can Make a Difference | Join the BDSRA Fam Funds Movement
Written by Beth Fries Imagine turning your journey into [...]
BATTEN DISEASE AWARENESS DAY T-SHIRTS ARE HERE!
The 2025 International Batten Disease Awareness Day T-shirts are [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | February & March 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
The winner of the Batten Disease Awareness Day T-Shirt Design Contest is…
🚨 THE VOTES ARE IN! 🚨 Here is the [...]
BDSRA Annual Family Conference Registration is Open!
Annual Family Conference registration is open! Plus, we have [...]
T-SHIRT DESIGN VOTING IS OPEN! Voting Closes Sunday
IT’S TIME TO VOTE! We’ve narrowed the Batten Awareness [...]
FEBRUARY/MARCH 2025 NEWSLETTER | The Illuminator From BDSRA
February/March 2025 [...]
Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!
RESERVE YOUR HOTEL ROOM IN LINCOLN, NEBRASKA! The hotel [...]
BREAKING: Batten Disease Global Research Initiative Announces Grant Recipients
We are proud to announce the recipients of the [...]
