Rare Disease Day Recap
BDSRA's community was very active during this year's Rare Disease [...]
2018 BDSRA Family Conference Registration is open!
Registration for the 2018 BDSRA Conference is now live! We [...]
BDSRA is now accepting letters of intent (LOI) for 2018!
Focus for 2018's Research Funding Round: Biomarkers BDSRA seeks letters [...]
Rare Disease Day
Rare Disease Week on Capitol Hill : February 25-March 1 Join advocates, [...]
The February Illuminator is here!
The latest issue of the Illuminator is here! Click here to read [...]
A Community of Kindness
The BDSRA staff is constantly in awe of how kind [...]
BDSRA Has A New Address
We’ve moved to a new location to better meet the [...]
The December Issue of the Illuminator
The latest issue of the Illuminator is here! Click here to read [...]
Support BDSRA’s Annual Fund
We are energized by this and yet are acutely aware of how much more there is to do for all forms of the disease. It truly takes a long-term commitment to support, advocate, and build a better future for children and families impacted by Batten disease.
The October Issue of the Illuminator
The latest issue of the Illuminator is here! Click here to read [...]
