Global Update – CLN5 Batten Disease Clinical Trial
August 12, 2024 – On Friday, August 9, Neurogene Inc. [...]
JULY NEWSLETTER | Read The Illuminator
July 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | July 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
FDA Approves BioMarin’s BRINEURA® for Children Under 3 Years with CLN2 Batten Disease
Read the following press release and information below courtesy of [...]
NEW Upcoming Batten Disease Community Event; 2025 Family Conference Location
Gather your pups and pals because it’s almost time [...]
BREAKING: BDSRA Foundation Unveils CoE & Affiliates; Batten Disease Global Research Initiative
ST. LOUIS (July 15, 2024) – The BDSRA Foundation [...]
PHOTO GALLERY | 2024 Annual Family Conference
Go behind the scenes of the 2024 BDSRA Foundation [...]
SURVEY: Batten Disease Research Priorities
We are now leading phase 2 of the Batten [...]
JUNE NEWSLETTER | Read The Illuminator
June 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | June Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
