RARE DISEASE WEEK | Advocate For The Batten Disease Community Today!
Send Emails to Your Congressional Reps in 3 Easy [...]
Joint Statement to the Global Batten Disease Community
On Thursday, February 15, 2024, important news broke regarding CLN1 [...]
Batten Disease Q&A | 2024 WORLDSymposium Recap
Amy Fenton Parker It [...]
Joint Statement to the Global Batten Disease Community
Dear Batten community, As many of you know, we have [...]
JANUARY NEWSLETTER | Read The Illuminator
January 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | January Illuminator Edition
Another month has passed, which means it's time for research [...]
BDSRA Unveils 2023 Annual Appeal Fundraising Total
Your words guide our work, and your gifts propel [...]
Happy New Year to the Batten Disease Community From BDSRA!
Happy New Year, Batten families! We’re excited to turn [...]
2023 Research in Review Webinar Recording | Batten Disease
Hosted by BDSRA's Head of Research & Medical Affairs, Dr. [...]
READ | The Illuminator November Edition Has Arrived!
November 2023 [...]
