Reserve Your Hotel Room(s) for the 2025 Annual Family Conference!
RESERVE YOUR HOTEL ROOM IN LINCOLN, NEBRASKA! The hotel [...]
BREAKING: Batten Disease Global Research Initiative Announces Grant Recipients
We are proud to announce the recipients of the [...]
The Latest BDSRA & Batten Disease Community Events and Updates
Included in this email update: Batten Disease Global Research [...]
IT’S RARE DISEASE DAY! 🦓 Here’s what we got going on
THERE'S LOTS GOING ON! TODAY'S Nationwide Panda Express Fundraiser [...]
CLINICAL UPDATE: Tern Therapeutics Gives CLN2 Batten Disease Update
The following letter from Tern Therapeutics shares the latest on [...]
TAKE ACTION for the Batten Disease Community
While Rare Disease Week on Capitol Hill attendees meet [...]
BIG BATTEN DISEASE FUNDRAISING NEWS…and a new event!
28% of Panda Express Online Sales go to BDSRA [...]
Gretchen Fieschko Joins BDSRA Foundation Board of Directors
The BDSRA Foundation is thrilled to welcome Gretchen Fieschko to [...]
JANUARY 2025 NEWSLETTER | The Illuminator From BDSRA
January 2025 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | January 2025
It's time for the first Batten disease research updates [...]
