Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
Complete the Post-BDSRA Conference Surveys!
Overall Conference Survey Life Goes On Survey Childcare [...]
News Coverage Spotlights BDSRA Conference and Batten Disease
THANK YOU to 10/11 News and News Channel Nebraska [...]
JUNE 2025 NEWSLETTER | The Illuminator From BDSRA
June 2025 [...]
Hotel Room Block Deadline is JULY 1
Reserve your Hotel Rooms by TOMORROW, July 1! TOMORROW, [...]
Shop from Fundraisers to Support BDSRA!
We have secured fundraising with several outside companies that [...]
Conference Hotel Room Deadline Extended!
Reserve your Hotel Rooms by July 1! You now [...]
ONE MONTH AWAY! (View the Conference Agenda)
We are ONE MONTH AWAY from Day 1 of [...]
MAY 2025 NEWSLETTER | The Illuminator From BDSRA
May 2025 [...]
UPCOMING EVENTS & DEADLINES
UPCOMING EVENTS There are LOTS of important events and [...]
