SEPTEMBER NEWSLETTER | Read The Illuminator
September 2024 [...]
Batten Disease Q&A | Global Genes RARE Advocacy Summit Summary
KANSAS CITY, Mo. – The Batten Disease Support, Research, and [...]
BDSRA Applauds Latest News From ForeBatten Foundation on Zebronkysen
We applaud the news from our friends at ForeBatten Foundation [...]
AUGUST NEWSLETTER | Read The Illuminator
August 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | August 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of [...]
Tern Therapeutics Enters into a Global Licensing Agreement with REGENXBIO Inc. for RGX-381 and RGX-181
Tern Therapeutics has announced its launch and entered into [...]
Batten Disease Clinical News; IMPORTANT Deadlines Approaching!
GLOBAL UPDATE – CLINICAL TRIAL NEWS Neurogene Inc. announced [...]
Global Update – CLN5 Batten Disease Clinical Trial
August 12, 2024 – On Friday, August 9, Neurogene Inc. [...]
JULY NEWSLETTER | Read The Illuminator
July 2024 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | July 2024 Illuminator Edition
It's time for research updates! BDSRA Foundation's Head of Research [...]
