BDSRA Foundation Announces Boys Town National Research Hospital as New Site in Clinical Centers of Excellence Program; Two Sites Earn CoE Promotions
GAHANNA, OH (January 29, 2026) – The Batten Disease [...]
FINAL CALL: 2026 Conference Theme Ideas
It's the final call for theme ideas for the [...]
Important Announcement: Building a Stronger Future for BDSRA
January 14, 2026 Dear Community, For 39 years, BDSRA has [...]
BDSRA 2026 Annual Family Conference | Ideas from Batten Disease Community
Here’s a look back at some of the Annual [...]
BDSRA Foundation Welcomes Four New Board Members
The BDSRA Foundation is proud to welcome four new [...]
How BDSRA Supports Bereaved and Actively Caring Batten Disease Families
The BDSRA Annual Family Conference is a haven [...]
Batten Disease | BDSRA Foundation Bids Two Board Members Farewell
Darlene Royalty “Darlene has been a valuable source [...]
Why fundraise for BDSRA and Batten disease?
“If every single person on the planet knew [...]
Why NOW is the time to give to BDSRA
Thanks to YOUR generosity, major initiatives like the [...]
HOLIDAY NEWSLETTER | The Illuminator From BDSRA
Holiday Season 2025 [...]
