Batten Disease Research Updates with Dr. Ineka Whiteman | Sept-Nov 2025
It’s time for Batten disease research updates! BDSRA Foundation’s [...]
CLN2 Batten Disease Update from Tern Therapeutics
More positive news for our CLN2 community this week, [...]
CLN2 Batten Disease Update from Latus Bio
Latus Bio announced today clearance by the U.S. Food [...]
Our Giving Tuesday Goal | Batten Disease
Giving Tuesday is NEXT WEEK! We know this year [...]
NOVEMBER ASK-AN-EXPERT EVENT POSTPONED; WILL BE RESCHEDULED
The next Ask-An-Expert session, which was scheduled for Tuesday, [...]
OCTOBER 2025 NEWSLETTER | The Illuminator From BDSRA
October 2025 [...]
From Voices to Breakthroughs—the 2025 NORD Breakthrough Summit | Batten Disease
Written by BDSRA Foundation President & CEO Amy Fenton Parker [...]
Read BDSRA’s 2024 Impact Report | Batten Disease
Dear Friend, Because of your support, 2024 was a [...]
SEPTEMBER 2025 NEWSLETTER | The Illuminator From BDSRA
September 2025 [...]
