PUBLICATION ALERT: Batten Disease Research Goals Published in The Lancet Neurology
In 2024, recognizing the urgent need to establish research [...]
BDSRA Foundation Announces Mount Sinai Health System as New Site in Clinical Centers of Excellence Program
GAHANNA, OH (September 22, 2025) – The BDSRA Foundation [...]
EVENT: First Carolinas Batten Disease Family Day!
The following is a message from the Carolinas Batten [...]
The 2026 Conference will take place…
As our conference attendees found out during July’s conference, [...]
AUGUST 2025 NEWSLETTER | The Illuminator From BDSRA
August 2025 [...]
EOIs NOW OPEN ➡️ BDGRI 2025-26 Grant Round
Expressions of Interest are now open for the 2025-26 [...]
Batten Disease Research Updates with Dr. Ineka Whiteman | Summer 2025
It's time for Batten disease research updates! BDSRA Foundation's [...]
JULY 2025 NEWSLETTER | The Illuminator From BDSRA
July 2025 [...]
BDSRA Board of Directors Announcements
At the latest [...]
Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
