Advocacy

Beth Fries to Lead Development Projects for the BDSRA Foundation

Beth Fries We have contracted Beth Fries, a [...]

By Patrick Kotnik|2025-01-16T11:00:42-05:00January 16th, 2025|Advocacy, Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA We can’t discover [...]

By Patrick Kotnik|2024-12-19T17:17:57-05:00December 27th, 2024|Advocacy, Latest News, Research News|Comments Off

CLICK HERE TO DONATE TO BDSRA Caring for a [...]

By Patrick Kotnik|2024-12-18T11:46:56-05:00December 19th, 2024|Advocacy, Latest News|Comments Off

CLICK HERE TO DONATE TO BDSRA The Annual Family [...]

By Patrick Kotnik|2024-12-12T12:05:10-05:00December 12th, 2024|Advocacy, Latest News|Comments Off

KANSAS CITY, Mo. – The Batten Disease Support, Research, and [...]

By Patrick Kotnik|2024-10-02T14:02:53-04:00October 2nd, 2024|Advocacy, Latest News|Comments Off

WE'RE GETTING CLOSER TO OUR FUNDRAISING GOAL! WE'VE RAISED [...]

By Patrick Kotnik|2024-06-09T11:17:24-04:00June 9th, 2024|Advocacy, Latest News|Comments Off

International Batten Disease Awareness Day is Sunday, June 9! [...]

By Patrick Kotnik|2024-06-09T11:15:05-04:00June 6th, 2024|Advocacy, Latest News|Comments Off

Batten Research Survey Deadline Extended In partnership with Kennedy [...]

By Patrick Kotnik|2024-05-24T11:35:37-04:00May 24th, 2024|Advocacy, Latest News, Research News|Comments Off

If you haven't purchased your International Batten Disease Awareness [...]

By Patrick Kotnik|2024-05-09T17:06:34-04:00May 10th, 2024|Advocacy, Latest News|Comments Off

In his own words, BDSRA Foundation Database Manager Noah Siedman [...]

By Patrick Kotnik|2024-05-02T15:46:53-04:00May 2nd, 2024|Advocacy, Latest News|Comments Off