Batten Disease Advocates Applaud B.C. Government’s Reversal on Brineura Funding
July 18, 2025—Batten Disease Support, Research, and Advocacy (BDSRA) Canada, [...]
UPCOMING EVENTS & DEADLINES
UPCOMING EVENTS There are LOTS of important events and [...]
BATTEN DISEASE AWARENESS DAY T-SHIRTS ARE HERE!
The 2025 International Batten Disease Awareness Day T-shirts are [...]
The Latest BDSRA & Batten Disease Community Events and Updates
Included in this email update: Batten Disease Global Research [...]
TAKE ACTION for the Batten Disease Community
While Rare Disease Week on Capitol Hill attendees meet [...]
BDSRA Fam Funds & Feedback
*First 50 Responses will be mailed a $10 Dunkin' [...]
Beth Fries to Lead Development Projects for the BDSRA Foundation
Beth Fries We have contracted Beth Fries, a [...]
An EXCITING Future for Batten Disease Research
CLICK HERE TO DONATE TO BDSRA We can’t discover [...]
Your Donation Makes a Difference – Help Bring Support to Batten Disease Families!
CLICK HERE TO DONATE TO BDSRA Caring for a [...]
Thanks To You, Batten Disease Families Have A Community
CLICK HERE TO DONATE TO BDSRA The Annual Family [...]
