UPCOMING EVENTS & DEADLINES
UPCOMING EVENTS There are LOTS of important events and [...]
UPCOMING EVENTS There are LOTS of important events and [...]
The 2025 International Batten Disease Awareness Day T-shirts are [...]
Included in this email update: Batten Disease Global Research [...]
While Rare Disease Week on Capitol Hill attendees meet [...]
*First 50 Responses will be mailed a $10 Dunkin' [...]
Beth Fries We have contracted Beth Fries, a [...]
CLICK HERE TO DONATE TO BDSRA We can’t discover [...]
CLICK HERE TO DONATE TO BDSRA Caring for a [...]
CLICK HERE TO DONATE TO BDSRA The Annual Family [...]
KANSAS CITY, Mo. – The Batten Disease Support, Research, and [...]