The Latest BDSRA & Batten Disease Community Events and Updates
Included in this email update: Batten Disease Global Research [...]
TAKE ACTION for the Batten Disease Community
While Rare Disease Week on Capitol Hill attendees meet [...]
BDSRA Fam Funds & Feedback
*First 50 Responses will be mailed a $10 Dunkin' [...]
Beth Fries to Lead Development Projects for the BDSRA Foundation
Beth Fries We have contracted Beth Fries, a [...]
An EXCITING Future for Batten Disease Research
CLICK HERE TO DONATE TO BDSRA We can’t discover [...]
Your Donation Makes a Difference – Help Bring Support to Batten Disease Families!
CLICK HERE TO DONATE TO BDSRA Caring for a [...]
Thanks To You, Batten Disease Families Have A Community
CLICK HERE TO DONATE TO BDSRA The Annual Family [...]
Batten Disease Q&A | Global Genes RARE Advocacy Summit Summary
KANSAS CITY, Mo. – The Batten Disease Support, Research, and [...]
IT’S INTERNATIONAL BATTEN DISEASE AWARENESS DAY!
WE'RE GETTING CLOSER TO OUR FUNDRAISING GOAL! WE'VE RAISED [...]
ADVOCATE This International Batten Disease Awareness Day!
International Batten Disease Awareness Day is Sunday, June 9! [...]
