BDSRA Foundation Hires Dr. Ineka Whiteman as Head of Research & Medical Affairs
June 19, 2023 | Press Release GAHANNA, Ohio – The [...]
Six years after FDA approval, VanHoutan reflects on Brineura
The power of advocacy can be defined by Tracy VanHoutan’s [...]
Statement from Global Batten Disease Organizations on CLN7 Research
Dear families, As some of you have already heard, last [...]
Batten Research Updates: 10/13
Click on the links below to read up on the [...]
BDSRA Releases the 2019-2020 Impact Report
September 2021 Dear Batten [...]
REGENXBIO Inc. Update for the CLN2 Community
Click here to see full PDF Message to CLN2 [...]
A Letter to the Community from Taysha Gene Therapies
Taysha Gene Therapies has recently released the attached letter on [...]
WORLDSymposium 2021
WORLDSymposium 2021 February 8-12 basic, translational and clinical researchers, patient [...]
CLN2 Enzyme Replacement Trial Opens First US Site
We are very happy to announce that the first United [...]
